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Issue No. 2 April 10, 2007
News and Events
Other Interests
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URGENT |
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Must Know/Do |
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General Interest |
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1. Diabetes in Children and Adolescents Registry (DiCARE)
The Diabetes in Children and Adolescents Registry (DiCARE) is a MOH
supported service to collect information about diabetes mellitus. The
information can be used to estimate the incidence of diabetes disease
according to the types, to evaluate its risk factors and treatment in
the country. Such information is useful for assisting the MOH,
non-governmental organizations, private providers and industry in
planning and evaluation, leading to diabetes disease prevention and
control.
Purpose of the DiCARE
The objectives of the DiCARE are to:
· Determine the number and the time trend of diabetes mellitus in the children and adolescents in Malaysia.
· Determine the socio demographic profiles of these patients to better identify the high-risk group in our Malaysian population.
· Determine the number, evaluate and monitor the outcomes of intervention in terms of metabolic control and complications.
· Stimulate and facilitate research using this registry.
Source Data Provider
All paediatricians and physician in Malaysia beginning with those
currently working in the government sector and later on extending it to
those beyond (private and armed forces) for data on diabetes mellitus in
the country.
Progress Report
DiCARE was launched on 30th August 2006 in Serdang Hospital. Until to
date, 04th April 2007, 239 cases has been reported from 11 active sites.
Posted by: the secretary ACRM
2. CANCER INCIDENT LATEST REPORT 2003 – 2005 COMING SOON !!!!!
The National Cancer Registry will come out with the latest third year report. It is a statistical report to provide information on cancer risk an incident in Malaysia from year 2003 to 2005. The third report of the NCR describes the morbidity burden of cancer from 1st January 2003 to 31st December 2005. This report mainly a descriptive report which combined of 2003, 2004 and 2005 data and have detailed analysis, interpretation and comparison of data. In this report, morphology is reported in addition to topography and report on pediatrics malignancies also included.
Posted by: the secretary ACRM
The National Cancer Registry (NCR) was one of the seven clinical registries under the umbrella of the Clinical Research Centre of the Ministry of Health, which later became an activity under the Department of Radiotherapy and Oncology of Hospital Kuala Lumpur. In response to the call by the Director General of Health for a single Cancer Registry in Malaysia, and national data has now helped to provide impetus to the development of cancer programmes and initiatives, the time has come for the NCR to be taken over by the experts who rightly should run the population-based registries. The National Cancer Registry will now be managed by the Division of Public Health, who are already managing the regional cancer registries.
Posted by: the secretary ACRM
After the launching of NCVD-ACS registry, once again the cardiologist
sat together with a high strength of mind to initiate the second
registry under the umbrella, National Cardiovascular Disease Database.
An opportunity for collaboration comes around with the Melbourne
Interventional Group (MIG), Australia in the process of development of
PCI registry. The dream comes true. After all the struggles and hard
work, finally, the NCVD-PCI registry was initiated on 13th January 2007.
Another date to remembered in the chronicles of NCVD. The registry is
chaired by Dato’ Dr Rosli B Mohd. Ali, IJN. Its get started with
participation of 12 source data providers (SDP) involve government,
universities and private hospitals throughout Malaysia. From 1st January
2007 to date 5th April 2007, the total of 420 PCI cases reported online
by 5 SDP.
NCVD is grateful to the supportive SDPs for precious effort in
submitting their data. Thank you very much!
Posted by:
the secretary ACRM
The NCVD-ACS registry is celebrating its one-year anniversary this year
as it was launched officially on 31st March 2006 during the last NHAM
10th ASM. The registry is chaired by Dato’ Dr Jeyaindran Sinnadurai, HKL
and Dato’ Dr Azhari Rosman, IJN. The registry gets started with 6 pilot
sites. Now, it’s expanded to 10 active sites. From 1st January 2006 to
date 5th April 2007, the total of 3642 ACS cases have been reported
online by 10 sites. After all the effort taken, this year, we are
expecting to come up with the 1st report of the NCVD-ACS registry.
NCVD is grateful to the supportive SDPs for everlasting effort in
submitting their data. Thank you very much!
Posted by: the secretary ACRM
6. NCVD - the milestones of the database
NCVD will actively involve in exhibition during the NHAM 11th ASM that
scheduled to be held from 13th – 15th April 2007 in Hilton-Le Meridien
Hotel, KL Sentral. The main purpose is to be a one-stop information
centre for the NCVD users and also to promote the NCVD to the cohort.
Assistance will be provided for the users who are facing problem/
uncertain with the flow of data submission. We will be located near the
Hang Tuah room, Level 6, Le Meridien Hotel.
The climax event for the NCVD during the NHAM 11th ASM will be the ‘NCVD
- the milestones of the database’ meeting which is scheduled to be on:
Date: 14th April 2007
Time: 9.00 am – 11.30 am
Venue: Hang Tuah room,
Level 6, Le Meridien Hotel,
KL Sentral, Kuala Lumpur.
This would be an interactive session of users with the NCVD technical
committee for a good enhancement in the future.
Posted by:
the secretary ACRM
7. National Eye Database (NED)
National Eye Database (NED), a disease clinical database on eye disease
and eye care services was launched on January 1,2007 to MOH and
University Ophthalmology departments. It is a prospective, ongoing
systematic collection through web application on data pertaining to
specific visual threatening eye diseases, such as cataract, diabetic
retinopathy, glaucoma, contact lens related corneal ulcer, and outcome
of cataract surgery. It also collects census to monitor service
performance by centre in a monthly basis. Till date we have 29
participating centres ( 28 from MOH and USM)
The NED is governed by a technical committee consisting of public and
private ophthalmologists. It seeks guidance on its scope and future
directions from an advisory committee, constitutes of public and private
health care planner and eye care providers.
The NED is managed by NED Unit , which is based at CRC Hospital Selayang.
It is mended by a Registry manager, under the supervision of chairperson
of NED technical committee. Its functions are to monitor data entry from
each participating centre , collaborate with participating centre
coordinators and local hospitals CRC and generate annual report
NED has high level security in protecting its data. Data protection is
being ensured at all time through strict compliance with regulatory
requirements such as authentification of users and web application
owners, access control, encryption, audit trail, control of external
communication links and access, as well as system backup and disaster
recovery.
The NED Objectives
1. To collect information of eye disease which is of public health
importance - Public Heath burden
2. To determine treatment outcomes, and factors influencing outcomes of
cataract surgery- outcome assessment.
3. To provide means to evaluate ophthalmology services - need of
accountability
4. To disseminate epidemiological and clinical information promptly
through internet - public health advocate.
5. To promote research by all levels of eye care professionals &
coordinate multi-centre research
Till date ,we have 2872 entries into cataract surgery registry , 2315
entries into diabetic eye registry, 28 cases reported in contact lens
related corneal ulcer (active surveillance) , 20 MOH Ophthalmology
Departments have sent in their monthly service census . With these data,
we can now monitor the cataract surgery service and surgical outcome
more effectively, have surveillance on contact lens related corneal
ulcer and evaluate the magnitude of diabetic retinopathy among new
diabetic patients so as to plan a more efficient diabetic eye screening.
Key Performance Indicators proposed by MOH are being built into NED and
we hope regular KPI report will be available on web for SDP to download.
The most rewarding things of eNED is the real-time on line reports which
are displayed as table and graph on the website. The report is by centre
and only individual SDP can view its own report. We hope data collected
at NED will serve as baseline data to encourage more doctors to publish
scientific papers to journal.
The NED operation and reports were presented to all Heads of
Ophthalmology Department ( HoD )on April 6,2007 and it received
enthusiastic support by most HoDs.
For detail please visit
www.acrm.org.my/ned
Posted by: Dr. Goh Pik Pin
NED Technical Committee Chairperson
8. National Medical Device Survey (NMDS) Update
There is no doubt that Malaysia has made impressive improvement in
healthcare over the last decade. In the medical device sector, Malaysia
has experienced major growth and technological advances with increasing
numbers of user facilities and emergence of medical equipment with
state-of-the-art technology in our local clinical setting. However,
there is little knowledge about our capacity to provide these services
and whether, its quality standards, in terms of facilities, equipment
and personnel, are in keeping with the demand.
The National Medical Device Survey (NMDS) project, through its Hospital
Diagnostic and Therapeutic Survey, was established with the aim of
reflecting an overall picture of demographic distributions
(accessibility) and effective usage of medical devices in Malaysia.
Survey instruments were prepared taking into account expert opinion from
32 healthcare specialties. Data on health facilities and device
availability were then collected on voluntary basis from various public
and private health service providers.
At present, the response from both the public and private healthcare
institutions have been satisfactory. Although still accumulating data
from its ongoing survey, NMDS is currently producing a report looking
into patterns of accessibility and utilization of targeted medical
devices in specific therapeutic areas. We hope that the results of the
survey can play a role towards further improving the appropriateness of
our local current clinical practice.
Posted by:
the secretary ACRM
9. National Medicines Use Survey (NMUS)
National Medicines Use Survey is in its third year.
Following the publication of Malaysian Statistics on Medicine 2004,
Malaysian Statistics on Medicine 2005 (MSM 2005) is in the pipeline.
The first expert panel meeting to analyse the data and subsequently
write
the relevant reports for MSM 2005 will be held on the 14 April 2007 in
the National Pharmaceutical Control Bureau, MOH, Jalan Universiti,
Petaling Jaya. MSM 2005 is
estimated to be published two months later.
Posted by: the secretary ACRM
10. National Transplant Registry
The 2nd Report of National Transplant Registry 2005 has been published and is available for download at website: www.mst.org.my
Posted by: NTR manager
11. National Trauma database (NTrD) Update
1. To come up with a year report in
May 2006 – April 2007 by June/July
2. Plans include more hospitals in the trauma database eg Hosp Sg Buloh,
HUKM, Hosp Ipoh, Kuantan etc
3. Will ask for KKM for extension of the NTrD since the grant will
finish this year
4. Future collaboration with overseas hospitals eg Tan Tock Seng
Hospital in Singapore
Posted by: the secretary ACRM
This second edition of the e newsletter brings to you the latest news on
the registries currently supported by the ACRM. We hope to be able to
consistently deliver the latest happenings of your registry to the
attention of not only fellow members but in the future to a wider
audience once permission is granted.
This would help to further promote the cause and use of your registries.
This e newsletter would be published biannually and we hope that it will
serve as a platform for information exchange both within and between
registries.
Don’t forget to come for our EGM 2006 and 3 rd AGM on the 10th April in
MMA House. See you all there!!!
Here to serve the registries better……
Posted by: Editor